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Developmental Disabilities

The Arc of the United States 
The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. We encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities.  
Information: Click here

Centers for Disease Control and Prevention (CDC)
Fetal Alcohol Spectrum Disorders (FASDs) are a group of conditions that can occur in a person whose mother drank alcohol during pregnancy. FASDs are completely preventable if a woman does not drink alcohol during pregnancy. 
Information: Click here

Consumer Financial Protection Bureau (CFPB):  Focus on People with Disabilities
The CFPB empowers consumers to take more control over their economic lives and as such they have developed a companion guide which contains tips, tools, and skill-building resources based in insights from individuals with disabilities and from various organizations that serve them.
Click here for the guide, Click here for their blog, or Click here to learn more about the CFPB

The Division of Developmental Disabilities (DDD): Support Program, In Planning Stage
The Division of Developmental Disabilities (DDD) is in the development stages of a new program called the Support Program, which will provide needed support and services for adult individuals, 21 and older, living with their families or in their own unlicensed homes. It has been designed to help New Jersey better serve adults with developmental disabilities, significantly reduce the number of individuals waiting for supports and services, and enhance the State's ability to receive a federal "match" ($.50 on the dollar) for services that are currently funded via state-only funding. 
Information: Click here

The Division of Developmental Disabilities (DDD): Support Program Manual                 The Division and Regional Family Supports Planning Council has developed a quick guide for families which may assist them in gaining a basic understanding of the Supports Program and its service benefits. It may assist to those who are newly entering Division services, and it also may be particularly helpful for middle school and high school students with intellectual/development disabilities and their families.
Information: Click here

The Division of Developmental Disabilities (DDD): New Medicaid Eligibility Section
Many of you have questions and concerns regarding The Division of Developmental Disabilities (DDD) new rule mandating that all individuals 21 and over must be eligible for Medicaid in order to continue receiving services through DDD.  DDD recently added a "Medicaid Eligibility and DDD" section to its website. On it you will find Frequently Asked Questions, Fact Sheets and Medicaid Document Checklists. DDD also established an email address and phone number specifically for provider agencies and for families to use to contact DDD with questions or concerns regarding Medicaid eligibility DDD.
Information: 609.631.6505, email MediElighelpdesk@dhs.state.nj.us, or click here 

FAS Community Resource Center
Information about Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders (FASD).
Information: click here

FAS Diagnostic & Prevention Network (FAS DPN)
The mission of the FAS DPN is primary and secondary prevention of FAS through screening, diagnosis, intervention, training, education, and research. The WA State FAS DPN has expanded both nationally and internationally through the training of interdisciplinary teams. Several hundred interdisciplinary teams have been trained around the world.
Information: click here

Fetal Alcohol and Drug Unit (FADU)
Focuses on disseminating research information, providing consultation for individuals affected by prenatal exposure to alcohol, and intervening with high-risk mothers to prevent future births of children with fetal alcohol and drug effects.
Information: click here

Fetal Alcohol Syndrome Family Resource Institute (FAS*FRI)
A non-profit organization that seeks to understand and care for individuals disabled by prenatal alcohol exposure and their families, and to prevent future generations from having to live with this disability.
Information: click here

Guide for Families – Help in Selecting a Support Coordination Agency
For people receiving support through the Division of Developmental Disabilities (DDD).
Information: 732.235.9320, email susan.ellien@rutgers.edu, or click here

March of Dimes
Works to end premature birth and other problems that threaten our babies, helps moms have full-term pregnancies and healthy babies, offers information and comfort to families, and researches the reasons why babies are born too soon or very sick and work on preventions.
Information: click here

Mom 2 Mom Helpline Program
For mothers caring for children with special needs. Clinicians and peer supporters (other mothers with special needs children trained in peer counseling and crisis support) provide telephone support, explain resources, and explore your needs. Live chat support also available through website. 
Information: 877.914.MOM2 (6662) or click here

National Institute for Alcohol Abuse and Alcoholism (NIAAA)
The National Institute on Alcohol Abuse and Alcoholism (NIAAA) is one of the 27 institutes and centers that comprise the National Institutes of Health (NIH). NIAAA supports and conducts research on the impact of alcohol use on human health and well-being. It is the largest funder of alcohol research in the world.
Information: Click here

National Organization on Fetal Alcohol Syndrome (NOFAS)
The NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.
Information: Click here

NJ Council on Developmental Disabilities
Works to ensure that people with developmental disabilities become empowered advocates and participate in the design of services and support.
Information: Click here

PerformCare: Children Receiving Services, DDD Transfer to DCF
Beginning January 1, 2013 all children (up to age 21) receiving services thorough the Division of Developmental Disabilities (DDD) will transfer to the Department of Children and Families (DCF). The State of New Jersey has for many years contracted with PerformCare to administer DCF’s Child Behavioral Health System. PerformCare is now the single point of entry for children with I/DD in New Jersey as well. PerformCare recently published a Fact Sheet, “Frequently Asked Questions for Families with Children with Developmental and Intellectual Disabilities,” that provides information regarding the switch.  
Information: Click here

SAMHSA FASD Center for Excellence
Under the previously funded FASD Center for Excellence, SAMHSA developed several publications and resources that continue to be available. The following are intended to assist people affected by FASD and their families, state and local agency administrators, and service providers.  
Information: Click here

Substance Abuse and Mental Health Services Administration (SAMHSA): Treatment Facility Locator
A confidential and anonymous source of information for persons seeking treatment facilities in the U.S. or U.S. Territories for substance abuse/addiction and/or mental health problems.  
Information: Click here

"When Caregivers Need the Healing." New York Times.  28 July 2014. Saint Louis, Catherine
Studies show that parents of children with developmental disabilities, like autism, experience depression and anxiety far more often than other parents. A study found that just six weeks of training in simple techniques led to significant reductions in stress, depression and anxiety among these parents.
Information: Click here

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